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Because of its typically slowly progressive nature, CIDP can present symptoms for months or longer before activities of daily living are impaired and the disorder is diagnosed. Once it is determined that a patient has CIDP, first line treatment choices are corticosteroids, plasmapheresis (plasma exchange) or intravenous immunoglobulin (IVIG). In contrast to GBS, breathing, swallowing and speaking are rarely affected, though it is still important to establish a diagnosis and set a course of treatment as soon as possible. If left untreated, or if treatment is significantly delayed, CIDP can lead to severe nerve damage that may not be entirely recoverable. In fact, reinnervation and long-term disability rates are worse for patients with CIDP than for those with GBS, with the likelihood of progression and recurrence being much higher.
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Test kit or other acceptable means as tolerated). Sensation should be re-assessed frequently to track progress of reinnervation, monitor muscle soreness and avoid causing undue pain during therapy.
Exercising to exhaustion will require recovery time that can delay resumption of therapy. If complaints of increased fatigue last more than 12 to 24 hours, then the patient probably has worked too hard.
Patient/Caregiver Interview The most important part of any evaluation is the patient interview. Only the patient can tell you how they are feeling, what they have experienced and where they want to be after therapy. Be conscious and respective of their emotions. The interview is also a good time to assess the caregiver and environmental support that the patient has at home and what their needs may be after discharge.
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Your greatest tool is the active involvement of your patient in their Plan of Care. Unless they can get past their feelings of fear, anxiety and guilt, it will be very difficult to move forward. The best way to help your patient conquer these challenges is to let them know that they are not alone.
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Clinical features of MFS often accompany GBS. Principles of care for GBS also are applicable to MFS.
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Motor and sensory involvement is symmetrical in proximal and distal muscles with symptoms progressing in an ascending fashion, the lower limbs usually being affected first. In severe cases, autonomic nervous system dysfunction also can occur, the presence of which is suggested by orthostatic dizziness, bowel and bladder function complications and/or cardiac symptoms.
Several possible functional activities include bed mobility, transfers, gait and/or wheelchair mobility, sitting and standing balance while reaching, dressing, feeding, bathing/toileting, writing/typing, leisure activities and/or reintegration into the work environment. Remember that pain can be a prominent factor during the entire course of recovery.
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Many patients also demonstrate at least a period of low motivation toward participating in their Plan of Care (especially home programs) as they realize that their recovery is not always directly related to their personal efforts. This understanding is discouraging and can lead to apathy and/or depression.
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Of their motor nerves with slowed conduction. The disorder can extend over two to as long as 20 years or more. Nerve conduction tests with selective nerve mapping aids the diagnosis. Because of its slow and variable presentation, MMN may not be recognized readily. Over time, ongoing weakness may lead to muscle atrophy.
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Of breath; in about one third of patients, intubation and a ventilator temporarily become required. Consequently, most newly diagnosed patients are placed in an intensive care unit for monitoring. Plasma exchange (PE) or a high dose of intravenous immune globulins (IVIG) often hasten recovery. Corticosteroids are not helpful for GBS, but frequently are used to treat CIDP.
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Journey, or they just may be getting started, but their experience to this point undoubtedly has been a frightening and stressful one. Some of a patient’s greatest fears regarding therapy are that their therapist will not know what to do with them and/or will not understand their limitations, or that therapy will be so painful and/ or hard that they will not be able to move the next day.
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GBS and CIDP are acquired immune-mediated inflammatory disorders of the peripheral nervous system. Their etiology is not completely understood, and neither disorder is contagious.
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Santo Garcia, Master’s in Occupational Therapy, provides home- based OT. He teaches health care professionals as Adjunct Professor at Hodges University School of Allied Health as well as through his national educational programs. His personal experience with CIDP provides added expertise.
Is essential to help the patient move on their own as soon as possible, without exercising to fatigue, in order to help reduce the progression of disuse atrophy and other complications. The “No pain, no gain” philosophy should not be applied. Exercising to exhaustion will delay recovery without benefitting the patient.
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